As summer moves along, everything with Hunter is normal baby stuff! It's so hard to comprehend that just a few months ago our world was upside down and did not know where we would be today. All of his doctor appointments, check ups etc., have been great! He is growing and developing as he should, see for yourself!
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| Big SMILES!! |
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Precious Little Foot!
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EDUCATION NOTE: It is not unusual for heart babies to have difficulties with nursing. It requires a lot of energy, they have to interupt breathing to suck, then swallow. Because this can be so taxing, it is easy for babies to aspirate at feeding. Many times to ensure they are receiving proper nutrition a NG(nasal gastric) tube is placed early on to help, but as baby grows, it will be likely that it will be pulled out. Hunter did this once while still in the hospital, so it was decided to give him a Mic-key button. He received his a few days before discharge. He will probably keep this until after his third surgery, at approximately 20 months of age.
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| The small white tube with the white tape is the ng tube |
After Hunter pulled out his gt tube it was replaced with a Mic-key button feeding system, the white button with the tube attached at his belly:
As soon as he is strong enough and swallow studies prove there is no chance of aspiration, he will be allowed to take a bottle. The mic-key button will remain in place as back-up, just in case he needs any nutritional assistance.
